The European Alliance for Access to Safe Medicines (EAASM) is an independent, non-profit pan-European coalition dedicated to protecting patient safety. Its key activities include campaigning for the safer use of unlicensed or off-label medicines, the adoption of medical, pharmacy and nursing practices that aim to eradicate medication errors, better harmonisation of compounding practices, and the exclusion of counterfeit and substandard medicines from the supply chain, raising public awareness around such issues, and promoting effective legislation. The latest focus has been given to the field of nanomedicines to help ensure patient safety and realise new treatment opportunities across Europe.
Health First Europe is excited to welcome this organisation as a member, and looks forward to working together to advocate for patient safety!
HFE is delighted to welcome the International Society on Thrombosis and Haemostasis (ISTH) and their European branch the European Thrombosis and Haemostasis Alliance (ETHA) as new members.
ISTH was founded in 1969 and its European branch ETHA was established in 2017. They are a global not-for-profit membership organization advancing the understanding, prevention, diagnosis and treatment of thrombotic and bleeding disorders.The Society is dedicated to transformative scientific discoveries and clinical practices, the development of young professionals and the education of physicians, scientists and allied health professionals wherever they may live.
Their mission is to give the thrombosis and hemostasis community a voice and drive prioritisation of thrombosis and hemostasis among policy makers as well as ensure patient safety and research programs. With a united focus on raising awareness of bleeding and clotting disorders, they stand together to work with the public as well as decision makers’ to provide input into health and patient safety strategies.
Health First Europe is excited to welcome these two associations as members and looks forward to working together to advocate for patients and healthcare workforce!
HFE is delighted to welcome the Council of Occupational Therapists for the European Countries (COTEC) as new member.
COTEC was established in 1986 with the purpose of coordinating the views of the National Associations of Occupational Therapy in Europe. The aim of COTEC is to enable National Associations of Occupational Therapists to work together to develop, harmonise and improve standards of professional practice and advance the theory of Occupational Therapy throughout Europe to best address the social and health issues affecting European citizens. COTEC strives to make Occupational Therapy visible, valued, accessible and available for all European citizens by supporting its members and by collaborating on European level.
COTEC is a non-profit organisation which represents 30 European Occupational Therapy Associations and more than 180,000 Occupational Therapists. COTEC is a regional group of the World Federation of Occupational Therapists (WFOT).
Health First Europe is delighted to welcome COTEC as member and looks forward to working together to advance high-quality health and social care across Europe.
HFE is delighted to welcome the European Health Management Association (EHMA) and European Specialist Nurses Organisations (ESNO) as new members.
Founded in 1982, the EHMA is a non-profit organisation focused is on health management capacity and capabilities and on supporting the successful implementation of health policy and practice. EHMA aims at bringing together health managers, health professionals, policy makers, researchers and educators. The association provides an environment where evidence, challenge and experience are valued and complex debates on current topics take place. With a secretariat located in the heart of Europe, EHMA maximizes its impact by placing its membership of over 100 members in 30 countries at the heart of all that it does.
ESNO is a non-profit organisation, it promotes and contributes to the health and wellbeing of Europeans by facilitating and enabling the political voice of specialist nurses. Through collaboration with key stakeholders, the professional status and evidence based practice of nursing specialities are strengthened. ESNO aims to secure the recognition of specialist nursing in the EU and greater Europe. ESNO works for promoting, supporting and developing academically accredited training programs for qualified specialist nurses to address Quality and Safety of care and mobility of workforce within Europe.
Health First Europe is excited to welcome these two associations as members and looks forward to working together to advocate for patients and healthcare workforce!
HFE is delighted to welcome the International Society for Neonatal Screening (ISNS) as a new member.
ISNS is recognized worldwide for its contributions to the detection of neonatal conditions and the prevention of outcomes through excellence in neonatal screening. ISNS has around 350 members in more than 70 different countries. Most members have a professional (para) medical background, but some are also involved in parents’ or patients’ organisations. The Society’s core mission is to enhance the quality of testing and medical services through dissemination of information, guidelines and best practices that benefit all family members and their babies by helping to ensure protection of babies from life-quality threatening conditions. For ISNS, this mission began in the early 1960s when the association became actively involved in the process of ensuring screening for phenylketonuria.
Given that neonatal screening is a discipline that interacts with many existing disciplines, such as clinical chemistry, clinical microbiology, pediatrics, genetics and psychology, ISNS will work together with the other pan – European and international stakeholders in Health First Europe to ensure that patients have access to screening tests, medical professionals and patient information for the detection of neonatal conditions.
Health First Europe is excited to welcome ISNS as a member and looks forward to working together to advocate for patients.
HFE is delighted to welcome the Active Citizenship Network (ACN) as a new organisational member.
Launched in December 2001 as the European and International interface of the Italian civic participation organisation Cittadinanzattiva (Active Citizenship). ACN is a flexible network of European civic organizations which are involved as partners in its different projects, addressed to encourage active participation of citizens in European policy-making.
ACN’s mission is to promote and support the construction of the European citizenship as an “active citizenship” which means the exercise of citizens’ powers and responsibilities in policy-making.
In 2002 ACN drafted the European Charter of Patients’ Rights in collaboration with 12 citizens’ organizations from different EU countries. The European Charter of Patients’ Rights states 14 patients’ rights that together aim to guarantee a “high level of human health protection” (Article 35 of the Charter of fundamental rights of the European Union) and to assure the high quality of services provided by the various national health services in Europe.
The 14 rights are an embodiment of fundamental rights and, as such, they must be recognised and respected in every country. They are correlated with duties and responsibilities that both citizens and health care stakeholders have to assume. The Charter applies to all individuals, recognising the fact that differences, such as age, gender, religion, socio-economic status etc., may influence individual health care needs
Since the launch of the European Charter of Patients` Rights, ACN has been in charge of the annual organisation European Patients Day.
Health First Europe is excited to welcome ACN as a member and looks forward to working together to advocate for patients
Health First Europe is delighted to welcome the International Patient Organisation for Primary Immunodeficiencies (IPOPI) as a new organisational member.
Established in 1992, IPOPI works as the global advocate to improve awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide in cooperation with its national member organisations and key PID stakeholders.
IPOPI activities are targeted to ensure optimal access to diagnosis and care, through the organization of political advocacy programmes and collaboration with European and international organizations. IPOPI also works to develop, strengthen and support national member organisations, through the organisation of awareness campaign workshops or regional advocacy workshops and to enhance the global visibility of primary immunodeficiencies.
IPOPI is a member of the Patient and Consumer Organisations Working Party of the European Medicines Agency and in 2007 IPOPI was accepted as a member of the World Health Organisation (WHO) Global Collaboration on Blood Safety.
Health First Europe is excited to welcome IPOPI as a member and looks forward to working together to advocate for patients.
Health First Europe (HFE) is delighted to welcome the European Diagnostics Manufacturers Association (EDMA) as a new member organisation. EDMA represents over 500 companies engaged in the research, development, manufacturing and distribution of in-vitro diagnostic (IVD) products across Europe. IVD products have enormous potential to transform healthcare systems by providing better care to patients through more accurate initial diagnoses as well as playing an essential role throughout the delivery of care from primary prevention, to evaluation and follow-up of treatment. Additionally, the IVD industry continues to support greater health literacy for patients who can now monitor their lab tests online through a tool developed specifically for patients.
EDMA members include national IVD associations from across Europe, hundreds of innovative SMEs (Small and Medium-Sized Enterprises) as well as the leading companies.
HFE welcomes EDMA and looks forward to our collaboration for ensuring patients receive high quality care and access to the most innovative technologies – from diagnosis to treatment, monitoring and recovery.
Health First Europe is pleased to welcome the European Confederation of Care Home Organisations (ECHO) to the organisation. ECHO was founded in 1989 as a confederation of private care and nursing home national associations in Europe. It is a non-profit organization pursuing social, scientific, informing and training aims in long term care sector and care services for older people. Located in Brussels, the Central Office pursues mainly the following objectives: fair and reasonable terms among care providers in long term care sector; high quality standards throughout Europe and a simultaneous reduction in bureaucracy; and a recognition of elderly care sector as a productive economy factor.
ECHO members provide residential care for independent and dependent elderly in care and nursing homes, day centres, services flats, dementia and rehabilitation centres, domiciliary care and telemedicine. ECHO is composed of the national federations of Bulgaria, Belgium, England, Finland, France, Germany, Greece, Italy, Portugal, Poland andthe Netherlands.. Its’ members take care now of more than 1,5 million elderly and employ 1,1 million staff people.
The European Confederation of Care Home Organisations has an important role at EU level in taking part in diverse European health regulation such as the Health Policy Forum, the European Innovation Partnership on Active and Healthy Ageing, ICT Policy Support Programme as part of the Competitiveness and Innovation framework Programme (CIP).
Health First Europe is pleased to have ECHO as a new member and looks forward to our future collaborations.
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