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On 7 June 2023, the PID Forum titled “Navigating the Complexities of the Pharmaceutical Legislation”, organised by the International Patient Organisation for Primary Immunodeficiencies (IPOPI) in collaboration with MEP Billy Kelleher (Renew, Ireland), MEP Cyrus Engerer (S&D, Malta) and MEP Tomislav Sokol (EPP, Croatia), will take place at the European Parliament.

While the overall rare disease regulatory framework has underpinned strong progress in medical treatment over the past years, there are many areas in need of improvement to ensure EU citizens with rare diseases can access innovative and affordable medicines.

Join this exciting event to discuss how patient organisations can engage in a dialogue about the EU’s pharmaceutical legislation and how it could – and should – impact the lives of people with rare diseases who rely heavily on the availability of effective treatments to manage their conditions.

  • When: 7 June, 14:30 – 16:00
  • Where: European Parliament, ASP1E3

You can register for the event here.


For more information on the event and its participants, please contact or you can visit IPOPI’s Twitter account here.